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Resources

What Is Advocacy?

Legislative & Executive Advocacy:
This type of advocacy focuses on influencing state and federal legislators, state governors, and the president, in an effort to gain either support or opposition to potential legislation that that affects the bleeding disorder community. For example- testifying in opposition in a public legislative hearing about proposed legislation that would harm the bleeding disorder community.

Insurance Industry Advocacy:
This type of advocacy includes communicating with the private insurance companies to inform them of how plans affect the bleeding disorder community. For example- meeting with insurance agencies to discuss how a change in health plans could affect bleeding disorder families.

State Agency Advocacy:
This type of advocacy involves working with state officials to ensure that state agencies, policies, procedures, and services meet the needs of our community. While legislative and executive advocacy efforts seek to shape laws, state agency advocacy involves influencing how those laws are managed. For example- meeting with the state medicaid director to discuss how a medicaid regulation change might affect the bleeding disorder community.  

Personal Advocacy:
This type of advocacy addresses personal situations, such as school and workplace issues. Many of us do this all the time! For example- meeting with the school nurse to discuss your child’s needs.